New & Expectant Parents

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If you recently received a Down syndrome diagnosis, there are many helpful resources available to you and your child from birth to adulthood. Here is a guide to get you started.
  • Join CCDSIG at ccdsig.org to receive a welcome basket, access helpful resources and information, and network with other parents.
    • Contact us at ccdsig@ccdsig.org to speak with another parent from our organization or to find support networks and resources in your area.
    • Follow us on Facebook at facebook.com/CCDSIG.
  • Visit downsyndromepregnancy.org for honest, compassionate, medically-reviewed, and informative support for those preparing for a baby with Down syndrome.
  • Join the Down Syndrome Diagnosis Network’s online network of parents on Facebook.
  • Apply for Medical Assistance at compass.state.pa.us.
    • Children diagnosed with Down syndrome automatically qualify for state funded health insurance. For information visit padlet.com/ccei/chescomainfo.
  • Register for Early Intervention in Chester County by calling 610-344-5948 or in any  county statewide by calling 1-800-692-7288.
  • Contact the West Chester Social Security Office at 1-888-306-3216 or visit ssa.gov to see if your child is eligible for Supplemental Security Income (SSI), a federal cash benefit based on a child’s disability or health condition and household income.
  • Schedule an appointment with a Down Syndrome Clinic for comprehensive, coordinated medical care.