New Parents

On behalf of the Chester County Down Syndrome Interest Group (CCDSIG) congratulations on the birth of your new baby!

We realize that the diagnosis of down syndrome may be creating many questions and concerns for you and your family, but know that it is ok. CCDSIG is here to help answer your questions and provide you with resources and support as you begin your journey with your new baby. The pages in the New Parent section highlight some of the organizations and resources available to you and your family.



Must Reads

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

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Health Matters

Questions for Healthcare Professionals: NOTE: Because we are parents, and not professionals, we do not claim that this is a complete list of the questions you should ask. Armed with knowledge, you will be able to supplement this list with questions that are specific to your child’s needs.

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Early Intervention & Services

Early Intervention services and supports can help a child’s development by answering questions about child development and more.

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Growth Chart – Girls

Weight and length growth charts for girls with Down Syndrome for ages 0-3 and 2-18.

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Growth Chart – Boys

Weight and length growth charts for boys with Down Syndrome for ages 0-3 and 2-18.

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Become a Member

Please call 610-889-0291 to speak with our new membership parent. We would love to hear about your new arrival!

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