The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome.

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination on all aspects of Down syndrome. The NDSC is financially supported primarily through membership dues and individual contributions.

The National Down Syndrome Congress was formed in 1973 by group of people who had been meeting as a committee of the Association of Retarded Citizens, now known as the Arc. Out of this meeting came the decision to become a self-sufficient organization dealing specifically with Down syndrome which is now known as the National Down Syndrome Congress. The original committee members were: Dr. Karol Storm, William Bronston, M.D., Kay McGee, Richard Koch M.D., George Johnson, and Betty A. Green, M.D. The NDSC was incorporated in the state of Illinois and operated in Illinois until 1993 when the National Center was moved to Atlanta, GA.

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