By Month:

February 2017

Matt was hanging out with his friends at a young adults with disabilities social group at Wayne Presbyterian Church when he saw Allie walk in. “The first time I saw her, she caught my heart,” he said.

CCDSIG 2017 Officers

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of […]

January 2012

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals […]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on […]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and […]

September 2011

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with […]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the […]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: […]

August 2011

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive […]

June 2011

From http://westchester.patch.com For 32 years the people of Media have hosted a five-mile race to raise money for charity.  And for several years, this bothered West Chester’s John Manion. “I thought, ‘Why don’t we have a race?’” Manion said.  “I was asking everyone, and they all said, ‘I don’t know.  Do it.’” And hence, the […]

May 2011

Click here to view the NDSS E-Newsletter for May 2011. Share on Facebook

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these […]

March 2011

The CCDSIG has been informed that there are a few openings remaining for this year’s Camp PALS experience. Camp PALS is a week-long camp for children with Down syndrome ages 14 – 21 held at Cabrini College, located in Radnor, PA. The mission of Camp PALS is to offer young adults with Down syndrome the best […]

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now […]

Read an inspiring article from the Philadelphia Inquirer about two Chester County young men, Nicky DiOrio and Jordan Van Sciver, from Great Valley High School. To read the full article, please visit: http://www.philly.com/philly/sports/high_school/20110221_Great_Valley_girls__basketball_coach_Alex_Venarchik_NO_HEAD_SPECIFIED.html Share on Facebook

World Down Syndrome Day is fast approaching! The twenty-first day of the third month, in honor of the third copy of the twenty-first chromosome, is the perfect time to raise awareness for people with Down syndrome and to celebrate their abilities and accomplishments. Join NDSS in celebrating World Down Syndrome Day in a meaningful way. […]

Lose The Training Wheels is pleased to announce confirmation of the first camp in the Philadelphia area for 2011.  Camp will be available at Harriton High School in Rosemont, PA the week of June 20-24, 2011. We also anticipate a camp in Bucks/Eastern Montgomery County the week of June 13-17.  Details are still in progress and […]

February 2011

Click here to view the NDSS February 2011 e-newsletter:  http://campaign.r20.constantcontact.com/render?llr=chgzaleab&v=001vd12ggE3Xa5MGnbwPunA2gPf5kiMa-h9D-1Ej5Q5zLZWgrfjphiEtz4UjPICKVtFmr2dA7nrXgzN1gpy3Ik0f1mX1pSwPndpalYAhTYj560%3D Share on Facebook

The Chester County Down syndrome Interest Group (CCDSIG) is a nonprofit organization that began in 1998 with a group of parents who wanted to meet for social contact and support.

The Chester County Down Syndrome Interest Group, Inc. is eligible to receive contributions through the United Way Donor Choice Program of Southeastern PA and of Lancaster County.

The Chester County Down syndrome Interest Group Inc.’s mission, the UPSIDE of Down syndrome.

Below are tips for the proper use of language for ‘Down syndrome’. The National Down Syndrome Society and the National Down Syndrome Congress encourages all media to use the below language: Down vs. Down’s. NDSS and NDSC use the preferred spelling, Down syndrome, rather than Down’s syndrome. While Down syndrome is listed in many dictionaries […]

Myth: Down syndrome is a rare genetic disorder. Truth: Down syndrome is the most commonly occurring genetic condition. One in every 733 live births is a child with Down syndrome, representing approximately 5,000 births per year in the United States alone. Today, more than 400,000 people in the United States have Down syndrome. Myth: People […]

We’ve compiled a list of links beneficial to parents of Down Syndrome children.

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

Questions for Healthcare Professionals: NOTE: Because we are parents, and not professionals, we do not claim that this is a complete list of the questions you should ask. Armed with knowledge, you will be able to supplement this list with questions that are specific to your child’s needs.

Early Intervention services and supports can help a child’s development by answering questions about child development and more.

Weight and length growth charts for girls with Down Syndrome for ages 0-3 and 2-18.

Weight and length growth charts for boys with Down Syndrome for ages 0-3 and 2-18.

Please call 610-889-0291 to speak with our new membership parent. We would love to hear about your new arrival!

October 2010

August 2010

The National Down Syndrome Society (NDSS) is pleased to announce that registration is now open for the 2010 National State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities sponsored by NDSS and the George Mason University . The conference will be held on October 28 and 29 at George Mason University […]

The Kennedy Krieger Institute is sponsoring a research study on boys with Down syndrome. Study details: Who: Boys, ages 3-12, with Down syndrome to participate in a behavioral and genetic research study. What: We will be testing learning skills, behavior, and measuring physical and motor development. We will also obtain a small blood sample for […]

July 2010

Click here to view the NDSS August 2020 e-newsletter: http://ndss.org/images/stories/NDSSresources/pdfs/august_e-news.pdf Share on Facebook

Dennis McGuire, PhD Adult Down Syndrome Center of Lutheran General Hospital Park Ridge, Illinois This paper was originally delivered as a plenary address at the conference in Chicago in July of 2005, co-sponsored by the National Down Syndrome Society and the National Association for Down Syndrome. It was well received by the audience, and we […]

And for dancers with Down syndrome, it stands for dreams come true By Karen White At first glance, there’s no mystery to the “d” in “Company d.” It stands for dance, or maybe for Darlene Winters, the speech therapist and lifelong dancer who founded the group nine years ago. Learn a bit more, and you […]

June 2010

Special thanks to Wendy Badman and photo by Wendy, LLC. Photo by Wendy is featured on facebook, please tell you friends, family and students to “like” us!! Thanks!! Here is the direct link : http://companies.to/photobywendy/ Share on Facebook

May 2010

Click here to view the NDSS May e-newsletter http://ndss.org/images/stories/NDSSresources/may%20enews%20word97-%20final.pdf Share on Facebook

April 2010

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants […]

February 2010

INCLUSION TODAY – HOW TO MAKE IT WORK FOR YOUR CHILD?   with CCIU INCLUSION SPECIALISTS: PATTY GIESCHEN AND CHARLIE ROBEY February 11, 2010   10:00am – 12:00pm INCLUSION TODAY – How to make it work for your child!  A brief snapshot of how special education has arrived at the inclusive practices of today, followed by a discussion of […]

January 2010

CCDSIG_Micah

by Joseph Shapiro December 29, 2009   Micah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Courtesy Micah Fialka-FeldmanMicah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Here’s one reason […]

November 2009

Please call us at (610)889-0291.  We’d love to hear from you and tell you more about the group. Share on Facebook

October 2009

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we […]

232323232fp537;;_nu=3388_288_846_WSNRCG=3289576;94343nu0mrj

What a great day!  The 2009 Buddy Walk was a resounding success with over $30,000 raised.  Thanks to everyone who participated as well as the overwhelming support for friends, family, and local businesses that support our Buddies. Please visit the Photo Gallery page to see just a few of the day’s highlights. Share on Facebook

August 2009

eks2

  As founder and honorary chairperson of Special Olympics and executive vice president of the Joseph P. Kennedy, Jr. Foundation, Eunice Kennedy Shriver has been a leader in the worldwide struggle to improve and enhance the lives of individuals with intellectual disabilities for more than three decades. Please visit her website to learn more about […]

We are please to announce that the following members have been elected to the Chester County Down Syndrome Interest  Group, Inc., Board of Directors for a two year term starting July 1, 2009. Please Congratulate: Elaine Scott – President Heidi Slater – VP of Education and Planning Colleen Brennan – Treasurer Chris Hyson – Membership […]

more alike

We’re More Alike Than Different. It’s the theme of the new NDSC Down syndrome awareness campaign. As resources mount we will bring that message to doctors, teachers, employers and your neighbors. It’s a simple, compelling and, ultimately, essential message delivered by self advocates – their stories told in their voices. Each time our message appears […]

ndsc

The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome. The purpose of the NDSC is to promote the interests […]

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued […]

July 2009

Buddy Walk Logo

What is the Buddy Walk? The Buddy Walk was developed by the National Down Syndrome Society in 1995 to promote awareness and inclusion of people with Down syndrome. The Buddy Walk has grown from 17 walks in 1995 to more than 260 walks were held in 2005. The goal of the Buddy Walk is to […]

By Category:

Archives

Buddy Walk Logo

What is the Buddy Walk? The Buddy Walk was developed by the National Down Syndrome Society in 1995 to promote awareness and inclusion of people with Down syndrome. The Buddy Walk has grown from 17 walks in 1995 to more than 260 walks were held in 2005. The goal of the Buddy Walk is to […]

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued […]

ndsc

The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome. The purpose of the NDSC is to promote the interests […]

more alike

We’re More Alike Than Different. It’s the theme of the new NDSC Down syndrome awareness campaign. As resources mount we will bring that message to doctors, teachers, employers and your neighbors. It’s a simple, compelling and, ultimately, essential message delivered by self advocates – their stories told in their voices. Each time our message appears […]

We are please to announce that the following members have been elected to the Chester County Down Syndrome Interest  Group, Inc., Board of Directors for a two year term starting July 1, 2009. Please Congratulate: Elaine Scott – President Heidi Slater – VP of Education and Planning Colleen Brennan – Treasurer Chris Hyson – Membership […]

eks2

  As founder and honorary chairperson of Special Olympics and executive vice president of the Joseph P. Kennedy, Jr. Foundation, Eunice Kennedy Shriver has been a leader in the worldwide struggle to improve and enhance the lives of individuals with intellectual disabilities for more than three decades. Please visit her website to learn more about […]

232323232fp537;;_nu=3388_288_846_WSNRCG=3289576;94343nu0mrj

What a great day!  The 2009 Buddy Walk was a resounding success with over $30,000 raised.  Thanks to everyone who participated as well as the overwhelming support for friends, family, and local businesses that support our Buddies. Please visit the Photo Gallery page to see just a few of the day’s highlights. Share on Facebook

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we […]

Please call us at (610)889-0291.  We’d love to hear from you and tell you more about the group. Share on Facebook

CCDSIG_Micah

by Joseph Shapiro December 29, 2009   Micah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Courtesy Micah Fialka-FeldmanMicah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Here’s one reason […]

INCLUSION TODAY – HOW TO MAKE IT WORK FOR YOUR CHILD?   with CCIU INCLUSION SPECIALISTS: PATTY GIESCHEN AND CHARLIE ROBEY February 11, 2010   10:00am – 12:00pm INCLUSION TODAY – How to make it work for your child!  A brief snapshot of how special education has arrived at the inclusive practices of today, followed by a discussion of […]

Share on Facebook

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants […]

Click here to view the NDSS May e-newsletter http://ndss.org/images/stories/NDSSresources/may%20enews%20word97-%20final.pdf Share on Facebook

Special thanks to Wendy Badman and photo by Wendy, LLC. Photo by Wendy is featured on facebook, please tell you friends, family and students to “like” us!! Thanks!! Here is the direct link : http://companies.to/photobywendy/ Share on Facebook

Click here to view the NDSS August 2020 e-newsletter: http://ndss.org/images/stories/NDSSresources/pdfs/august_e-news.pdf Share on Facebook

The Kennedy Krieger Institute is sponsoring a research study on boys with Down syndrome. Study details: Who: Boys, ages 3-12, with Down syndrome to participate in a behavioral and genetic research study. What: We will be testing learning skills, behavior, and measuring physical and motor development. We will also obtain a small blood sample for […]

The National Down Syndrome Society (NDSS) is pleased to announce that registration is now open for the 2010 National State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities sponsored by NDSS and the George Mason University . The conference will be held on October 28 and 29 at George Mason University […]

Share on Facebook

Click here to view the NDSS February 2011 e-newsletter:  http://campaign.r20.constantcontact.com/render?llr=chgzaleab&v=001vd12ggE3Xa5MGnbwPunA2gPf5kiMa-h9D-1Ej5Q5zLZWgrfjphiEtz4UjPICKVtFmr2dA7nrXgzN1gpy3Ik0f1mX1pSwPndpalYAhTYj560%3D Share on Facebook

Lose The Training Wheels is pleased to announce confirmation of the first camp in the Philadelphia area for 2011.  Camp will be available at Harriton High School in Rosemont, PA the week of June 20-24, 2011. We also anticipate a camp in Bucks/Eastern Montgomery County the week of June 13-17.  Details are still in progress and […]

World Down Syndrome Day is fast approaching! The twenty-first day of the third month, in honor of the third copy of the twenty-first chromosome, is the perfect time to raise awareness for people with Down syndrome and to celebrate their abilities and accomplishments. Join NDSS in celebrating World Down Syndrome Day in a meaningful way. […]

Read an inspiring article from the Philadelphia Inquirer about two Chester County young men, Nicky DiOrio and Jordan Van Sciver, from Great Valley High School. To read the full article, please visit: http://www.philly.com/philly/sports/high_school/20110221_Great_Valley_girls__basketball_coach_Alex_Venarchik_NO_HEAD_SPECIFIED.html Share on Facebook

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now […]

The CCDSIG has been informed that there are a few openings remaining for this year’s Camp PALS experience. Camp PALS is a week-long camp for children with Down syndrome ages 14 – 21 held at Cabrini College, located in Radnor, PA. The mission of Camp PALS is to offer young adults with Down syndrome the best […]

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these […]

Click here to view the NDSS E-Newsletter for May 2011. Share on Facebook

From http://westchester.patch.com For 32 years the people of Media have hosted a five-mile race to raise money for charity.  And for several years, this bothered West Chester’s John Manion. “I thought, ‘Why don’t we have a race?’” Manion said.  “I was asking everyone, and they all said, ‘I don’t know.  Do it.’” And hence, the […]

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive […]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: […]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the […]

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with […]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and […]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on […]

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals […]

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of […]

Matt was hanging out with his friends at a young adults with disabilities social group at Wayne Presbyterian Church when he saw Allie walk in. “The first time I saw her, she caught my heart,” he said.

Featured

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued […]

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we […]

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants […]

And for dancers with Down syndrome, it stands for dreams come true By Karen White At first glance, there’s no mystery to the “d” in “Company d.” It stands for dance, or maybe for Darlene Winters, the speech therapist and lifelong dancer who founded the group nine years ago. Learn a bit more, and you […]

Dennis McGuire, PhD Adult Down Syndrome Center of Lutheran General Hospital Park Ridge, Illinois This paper was originally delivered as a plenary address at the conference in Chicago in July of 2005, co-sponsored by the National Down Syndrome Society and the National Association for Down Syndrome. It was well received by the audience, and we […]

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now […]

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these […]

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive […]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: […]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the […]

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with […]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and […]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on […]

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals […]

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of […]

Matt was hanging out with his friends at a young adults with disabilities social group at Wayne Presbyterian Church when he saw Allie walk in. “The first time I saw her, she caught my heart,” he said.

New Parents

Please call 610-889-0291 to speak with our new membership parent. We would love to hear about your new arrival!

Weight and length growth charts for boys with Down Syndrome for ages 0-3 and 2-18.

Weight and length growth charts for girls with Down Syndrome for ages 0-3 and 2-18.

Early Intervention services and supports can help a child’s development by answering questions about child development and more.

Questions for Healthcare Professionals: NOTE: Because we are parents, and not professionals, we do not claim that this is a complete list of the questions you should ask. Armed with knowledge, you will be able to supplement this list with questions that are specific to your child’s needs.

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

What is Down Syndrome

We’ve compiled a list of links beneficial to parents of Down Syndrome children.

Myth: Down syndrome is a rare genetic disorder. Truth: Down syndrome is the most commonly occurring genetic condition. One in every 733 live births is a child with Down syndrome, representing approximately 5,000 births per year in the United States alone. Today, more than 400,000 people in the United States have Down syndrome. Myth: People […]

Below are tips for the proper use of language for ‘Down syndrome’. The National Down Syndrome Society and the National Down Syndrome Congress encourages all media to use the below language: Down vs. Down’s. NDSS and NDSC use the preferred spelling, Down syndrome, rather than Down’s syndrome. While Down syndrome is listed in many dictionaries […]

Who We Are

The Chester County Down syndrome Interest Group Inc.’s mission, the UPSIDE of Down syndrome.

The Chester County Down Syndrome Interest Group, Inc. is eligible to receive contributions through the United Way Donor Choice Program of Southeastern PA and of Lancaster County.

The Chester County Down syndrome Interest Group (CCDSIG) is a nonprofit organization that began in 1998 with a group of parents who wanted to meet for social contact and support.

CCDSIG 2017 Officers