By Month:

February 2012

Catherine Lasak

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of [...]

January 2012

The T21 Club invites you to attend their annual Beef and Beer on March 24th, 2012 from 7:00pm - 11:00pm. This fundraiser is being held at St. Katherine of Siena Parrish Hall, 9738 Frankford Avenue, Philadelphia, PA 19114, to support the T21 Club of the Delaware Valley. We will have great food, music, wonderful raffle prizes, and fun for [...]

The T21 Club of the Delaware Valley, in association with the National Down Syndrome Society, is proud to sponsor the Down Syndrome Awareness Night at Citizens Bank Park on Monday, April 30th, when the Philadelphia Phillies host the Chicago Cubs at 7:05pm! Seating will be located in the following  areas: Pavilion Deck (sections 308-309) at $28 per ticket [...]

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals [...]

Please join us for our annual CCDSIG birthday celebration on Sunday, February 12th from 3:45pm – 5:45pm taking place at Bounce U in Exton.  This is a family event for kids of all ages to celebrate our loved ones with Down syndrome and to enjoy time together!  Free pizza, cake, and “bouncing” for everyone, so we do ask families [...]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on [...]

The CCDSIG is delighted to share that we will be hosting another presentation regarding special needs trusts and estate planning on January 19th. Again, this is a very important topic for all of our families and one that can never be stressed enough or discussed too early. It is critical to understand this topic as we plan for [...]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and [...]

October 2011

The CCDSIG is pleased to offer a presentation regarding special needs trusts, estate planning, and preparing for the financial futures of our loved ones with Down Syndrome.  This is a critical topic for all families to fully understand and to begin discussing early and often.  Date:  Thursday, November 10th @ 7:30pm (lasting until approximately 9pm) Location:  East Goshen Township Building – [...]

Please join the CCDSIG for a coffee social on November 4th from 9:30-11:30am at Elaine Scott’s house in Malvern. Connect with old friends, meet new friends, and welcome all of our new families! We look forward to seeing you there and know that all kids are always welcome! Location: Elaine Scott’s house 837 Cottonwood Drive (at the intersection [...]

Princeton Disability Awareness (PDA) is gearing up for the 5th Annual Down Syndrome Conference coming up on Sunday, November 20th at Princeton University. As in the past, we are inviting your family to Princeton’s campus for a day of fun activities and important information.  While parents are attending the conference sequence featuring speakers and exhibitors who [...]

September 2011

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with [...]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the [...]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: [...]

REGISTRATION HAS BEEN EXTENDED UNTIL OCTOBER 31st! The Pennsylvania Education for All Coalition (PEAC) is hosting a conference on November 6 – 8, 2011 in Philadelphia. The conference will provide information on Inclusive Practices and will offer great speakers, sessions, a silent auction, and raffles. Participants can register for the entire 3-day conference or by the [...]

Please note the location change for our Back-to-School Coffee scheduled for this Friday, September 23rd from 9:30-11:30am. Come see old friends, meet new friends, have some coffee and munchies, and enjoy some chit chat! Of course, all children – any ages – are welcome, too! NEW Location: Dana Wainstein’s house, 133 Candlewick Drive, Avondale PA 19311, [...]

CCDSIG families have been invited to join in on a fun family event on Saturday, September 10 and a portion of the proceeds are being donated to CCDSIG! We hope that you and your family can join the fun! The CCDSIG is very appreciative of Smaltz’s Harley Davidson’s generosity for hosting such an event. Details are below…. Smaltz’s [...]

August 2011

Project SEARCH and Bryn Mawr Rehab Hospital Invites you to attend an Open House Wednesday, September 14, 4:30 p.m. The Laurels Conference Room This is a great opportunity to lean about Project SEARCH, our program designed to teach employable skills to individuals with disabilities. Project SEARCH provides adults with disabilities the opportunity to explore job development [...]

Project SEARCH and Bryn Mawr Rehab Hospital Invite you to attend an Open House Saturday, September 17, 10:30 a.m. This is a great opportunity to lean about Project SEARCH, our program designed to teach employable skills to individuals with disabilities. Project SEARCH provides adults with disabilities the opportunity to explore job development and job placement skills. Please [...]

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive [...]

June 2011

From http://westchester.patch.com For 32 years the people of Media have hosted a five-mile race to raise money for charity.  And for several years, this bothered West Chester’s John Manion. “I thought, ‘Why don’t we have a race?’” Manion said.  “I was asking everyone, and they all said, ‘I don’t know.  Do it.’” And hence, the [...]

Please mark your calendars! Register at Active.com Share on Facebook

May 2011

Click here to view the NDSS E-Newsletter for May 2011. Share on Facebook

Date: Tuesday, May 17th, 7:00pm – 8:00pm Location: Chester County Library, Struble Room Come to this FREE session for information about the financial and legal aspects of planning for someone with special needs. Learn about: Developing a personal care plan Protecting government benefit eligibility Understanding estate planning options and selecting a trustee Providing financial options [...]

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these [...]

Monday, May 9th – Friday, May 13th Campus locations: Monday – Thursday in the Rose Room, Friday in Whitsun Hall   Monday May 9, 7:30 PM: Advocacy Movie Night Tuesday May 10, 7:30 PM: Music and song by Tamara and BJ Wednesday May 11, 7:30 PM: Open Mic Night – $3 donation to benefit Susan [...]

CAMPHILL SOLTANE EXPOSITION: Discover who we are and what we are doing! Date: Friday, May 13, 2011 Time: 2:00 pm – 6:00 pm Place: Whitsun Hall at Camphill Soltane, 224 Nantmeal Road, Glenmoore, PA 19343 Admission free Camphill Soltane is an intentional community, a non-profit organization that provides continuing education and vocational pathways for adults [...]

Don’t miss the UP Festival, Saturday, May 14th, starting at 12pm! The UP Festival is the first of many of ROCK FOR CHOP’s events where guests will experience first hand the power that individuals with Down syndrome have to lift you UP. It is going to be a family friendly event featuring local bands, a [...]

The governor has proposed cutting more than $1 billion from education in order to help balance next year’s state budget. While many districts had already planned for spending reductions in anticipation of budget cuts, the scope and severity of the funding cuts caught most districts by surprise. Your state senators and representatives are in the [...]

CCDSIG Friends: The Upper Main Line YMCA is excited to share with us various opportunities available through the All Abilities Program. Upper Main Line YMCA Event, May 15th, 3:00pm – 5:00pm: Location: Upper Main Line YMCA / 1416 Berwyn-Paoli Road / Berwyn / 610 647 9622 Do you ever feel like your family is running [...]

We hope you can join us for a spring Coffee Social at Amanda Young’s house on May 6th. Kids are welcome!!   Location: Amanda Young’s house / 604 Brookhill Road / West Chester  Time: 9:30am – 11:30am Please R.S.V.P. to Amanda at ajyoung99@gmail.com or 610-344-7113 (Young Residence) Share on Facebook

March 2011

Join the Down syndrome community on Monday, May 23, 2011 for the Phillies game against the Cincinnati Reds at 7:05 p.m., Citizens Bank Park in Philadelphia, PA! Per the T21 Club of the Delaware Valley, there are over 800 people attending Down Syndrome Awareness Night! Tickets are subject to availability, there were only 84 tickets left, as [...]

Please join the T21 Club of the Delaware Valley for our annual Beef and Beer on April 16, 2011 from 7P.M to 11P.M.. This fundraiser is being held at St. Katherine of Siena Parrish Hall, 9738 Frankford Avenue, Philadelphia, PA 19114, to support the T21 Club of the Delaware Valley. We are a regional advocacy group for individuals [...]

Special Education Advocacy Training is available at the ARC of Chester County. Attend just one session or all 12. Register now because space is limited for this National Board Certification Program. This training is ideal for parents, educators, lawyers, occupational therapists, psychologists, social workers, special education advocates, and speech/language pathologists. Session 1 – April 9, 2011: [...]

The CCDSIG has been informed that there are a few openings remaining for this year’s Camp PALS experience. Camp PALS is a week-long camp for children with Down syndrome ages 14 – 21 held at Cabrini College, located in Radnor, PA. The mission of Camp PALS is to offer young adults with Down syndrome the best [...]

The West Bradford Youth Association (WBYA) is announcing the start of a Challenger Soccer League for children and young adults with special needs, so that all children can have the fun and experience of playing soccer!  The Program’s Mission:  is to create and foster the physical and emotional growth and development of children with special needs through the [...]

My name is Lynn Carahaly, M.A., CCC-SLP and I am an SLP that specializes in Childhood Apraxia of Speech. I grew up in Exton, PA  I hope to be a valuable resource for you and your families of children with Down syndrome and apraxia. The Down syndrome population is one of the most under diagnosed [...]

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now [...]

The Learning Experience is holding a special fundraiser for Ally Stahelek. Ally was born on August 13, 2009 with Down syndrome and an AV Canal Heart defect.  Ally has overcome many hurdles in her short life and she continues to make progress! Our goal is to raise money so her family can buy her some [...]

Please join us on Tuesday, May 17th from 7:30pm – 9:00pm to hear a presentation / discussion regarding education advocacy. This is the program that was originally scheduled for May 5th. Connie Mohn, from the ARC of Chester County, will speak to our group regarding this topic.   Location:  ARC of Chester County / 900 Lawrence [...]

Please join us for a coffee social on Friday, April 8th, from 9:30 – 11:30am at Elaine Scott’s house. Kids are welcome!  This is always a nice way to catch up with old friends, meet new ones, and share experiences! Elaine Scott’s house is located at: 837 Cottonwood Drive (the intersection of Rt 352 and [...]

Read an inspiring article from the Philadelphia Inquirer about two Chester County young men, Nicky DiOrio and Jordan Van Sciver, from Great Valley High School. To read the full article, please visit: http://www.philly.com/philly/sports/high_school/20110221_Great_Valley_girls__basketball_coach_Alex_Venarchik_NO_HEAD_SPECIFIED.html Share on Facebook

World Down Syndrome Day is fast approaching! The twenty-first day of the third month, in honor of the third copy of the twenty-first chromosome, is the perfect time to raise awareness for people with Down syndrome and to celebrate their abilities and accomplishments. Join NDSS in celebrating World Down Syndrome Day in a meaningful way. [...]

Lose The Training Wheels is pleased to announce confirmation of the first camp in the Philadelphia area for 2011.  Camp will be available at Harriton High School in Rosemont, PA the week of June 20-24, 2011. We also anticipate a camp in Bucks/Eastern Montgomery County the week of June 13-17.  Details are still in progress and [...]

February 2011

Click here to view the NDSS February 2011 e-newsletter:  http://campaign.r20.constantcontact.com/render?llr=chgzaleab&v=001vd12ggE3Xa5MGnbwPunA2gPf5kiMa-h9D-1Ej5Q5zLZWgrfjphiEtz4UjPICKVtFmr2dA7nrXgzN1gpy3Ik0f1mX1pSwPndpalYAhTYj560%3D Share on Facebook

Please join the CCDSIG on March 3rd, from 7:30pm – 9:00 pm, for an interactive discussion, “Understanding The ARC and Their Valuable Offerings.”  We will be hosting this program at the ARC of Chester County, 900 Lawrence Drive, West Chester, PA. Do you find yourself asking the following questions: “Who is the ARC of Chester County?”, “How can the [...]

Please join the CCDSIG on March 19th, from 9-10:30 am, for an interactive workshop, “Similarities and Differences.”  We will be hosting this at the ARC of Chester County, 900 Lawrence Drive, West Chester, PA. This presentation will teach YOU how to teach others about a variety of disabilities and to appreciate and respect the similarities and differences in [...]

Please join us on March 13th, from 3:00pm – 6:00pm, for the 13th Annual CCDSIG Teen Dance held at Mitch’s Market Street Gym!  The location for this event is 322 W. Market Street, West Chester, PA. Join Matt Reilly, Disco Star DJ, for this FREE event, with dancing, snacks, and pizza! Hosted by The Chester County Down Syndrome Interest Group, [...]

The Chester County Down syndrome Interest Group (CCDSIG) is a nonprofit organization that began in 1998 with a group of parents who wanted to meet for social contact and support.

The Chester County Down Syndrome Interest Group, Inc. is eligible to receive contributions through the United Way Donor Choice Program of Southeastern PA and of Lancaster County.

The following members have been elected to the Chester County Down Syndrome Interest Group, Inc., Board of Directors for a two year term starting July 1, 2009.

The Chester County Down syndrome Interest Group Inc.’s mission, the UPSIDE of Down syndrome.

Below are tips for the proper use of language for ‘Down syndrome’. The National Down Syndrome Society and the National Down Syndrome Congress encourages all media to use the below language: Down vs. Down’s. NDSS and NDSC use the preferred spelling, Down syndrome, rather than Down’s syndrome. While Down syndrome is listed in many dictionaries [...]

Myth: Down syndrome is a rare genetic disorder. Truth: Down syndrome is the most commonly occurring genetic condition. One in every 733 live births is a child with Down syndrome, representing approximately 5,000 births per year in the United States alone. Today, more than 400,000 people in the United States have Down syndrome. Myth: People [...]

We’ve compiled a list of links beneficial to parents of Down Syndrome children.

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

Questions for Healthcare Professionals: NOTE: Because we are parents, and not professionals, we do not claim that this is a complete list of the questions you should ask. Armed with knowledge, you will be able to supplement this list with questions that are specific to your child’s needs.

Early Intervention services and supports can help a child’s development by answering questions about child development and more.

Weight and length growth charts for girls with Down Syndrome for ages 0-3 and 2-18.

Weight and length growth charts for boys with Down Syndrome for ages 0-3 and 2-18.

Please call 610-889-0291 to speak with our new membership parent. We would love to hear about your new arrival!

November 2010

Please join the CCDSIG for a very important topic about keeping people safe. This presentation is geared for kids with a puppet show format and corrects outdated “stranger danger” information by empowering children with safety skills that last a lifetime! Participants will learn: * How to use their eyes, feet, heart, and voice to be safe. * How to YELL [...]

Come bounce, slide, and celebrate CCDSIG’s birthday with your CCDSIG friends on January 23rd from 12:30 – 2:30pm! Pizza, cake, and drinks will be provided. Please RSVP to www.ccdsig.org or CCDSIG hotline at (610) 889-3151 or heidi_huseby_slater@yahoo.com.  Phone number for BounceU is (610) 363-6610. Share on Facebook

Don’t miss the CCDSIG’s Mom’s Night Out on Thursday, January 6, 2011, meeting at 7:30pm at McKenzie’s Brew Pub! If you plan to attend, please RSVP to  Heidi Slater at heidi_huseby_slater@yahoo.com or CCDSIG hotline at (610) 889-3151. Share on Facebook

Don’t miss the SANTA EXPRESS on Sunday, December 5th, with the train departing at 3:00pm! Please see blurb below (from West Chester Railroad’s website) describing the event, which is open to the public.  We are suggesting this festive public event as a chance to group up and get together with CCDSIG friends and ride the train together. There is [...]

Due to family illness, the CCDSIG Holiday Coffee scheduled for Friday, December 10th at the home of Amanda Young has been cancelled. Stay tuned for information on rescheduling the coffee. Share on Facebook

Join the CCDSIG for a Wine and Cheese on December 2nd beginning at 8:00pm at the home of Heidi Slater! Please RSVP to Heidi at heidi_huseby_slater@yahoo.com or call the CCDSIG hotline at (610) 889-3151. We hope to see you there! Share on Facebook

Join us for this festive event ideal for kids 12 and under. All are welcome! Featuring picture taking with Santa (bring your own camera), delicious food, arts & crafts, music free Arc Art holiday cards for each family, and more! Please RSVP by November 29th. Sign-up online at www.arcofchestercounty.org, call us at 610-696-8090, or mail [...]

October 2010

The PA Microboard Association invites you to join us Saturday, October 30 to hear……… David Gates, Esq. of the PA Health Law Project talk about the legal aspects of forming a Microboard. David is the foremost authority on the legal and operational aspects of forming a Microboard in PA.  He has guided and counseled many families in the process. [...]

Special Olympics, Chester County, Fall Dance!  Friday October 15th 2010, 7:00 pm to 10:00 pm Thorndale Fire Hall, Business Route 30, Thorndale PA, 19372 (Behind Caln Elementary School) There is a $5 Cover Charge  and ALL Participants must sign in with Adult and Contact info. For more info contact Joan Grimley at 610-286-6363. Share on Facebook

Registration is now open for the 2010 Down Syndrome Conference, sponsored by Princeton Disability Awareness.  The conference will be held on Sunday, November 14th at Princeton University.  Register now at:  http://www.princeton.edu/~pda/register.shtml We invite your family to join us on Princeton’s campus for a day of fun activities and important information.  Parents attend informative workshops featuring speakers [...]

Pathways to Potential! Saturday February 26, 2011 7:30AM Registration (pre registration required, see below) 8:30AM – 5:30 PM Conference Citizens Bank Park Philadelphia, Pennsylvania WHAT’S IT ALL ABOUT? This dynamic team of Self Advocates are nationally recognized Motivational Speakers who have navigated through early intervention, classroom inclusion, transitions from high school to higher education and [...]

GUEST SPEAKER:   Pat Bergmaier, Special Needs Planner, MetLife Center for Special Needs Planning Thursday, November 4 / 7:30pm – 9:00pm/ The ARC of Chester County / 900 Lawrence Drive, West Chester PA Share on Facebook

Wednesday, November 3 / 9:30am-11:30am /Jeanie Mudgett-McGeoch’s home / 23 Dutton Farms Road / West Grove, PA  19390  Join families from the CCDSIG for a relaxing gathering over coffee, snacks, and lively conversation! Share on Facebook

Saturday, Oct. 23 at 6pm. / Jeanie Mudgett-McGeoch’s home / 23 Dutton Farms Road / West Grove, PA  19390  All families welcome!! Jeanie has so graciously offered to host a bonfire this month for all families.  In addition to another chance to socialize, we will enjoy a bonfire, roasting marshmallows, and making smores!   Please [...]

September 2010

Remember when you first became a parent to a child with Down syndrome and wanted to know other folks in your shoes?  Remember when you first moved to this area and wanted to meet other local families?  Remember when you decided now was the time to attend a CCDSIG event and meet other families?  Remember [...]

August 2010

The National Down Syndrome Society (NDSS) is pleased to announce that registration is now open for the 2010 National State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities sponsored by NDSS and the George Mason University . The conference will be held on October 28 and 29 at George Mason University [...]

The CCDSIG  invites you to join us on Friday, September 17 from 9:30-11:30am for a “Back-to-school” coffee! Come see old friends, meet new friends, have some coffee , and chit chat!  Of course, all children – any ages –  are welcome, too!   Location:  Heidi Slater’s house, 2060 Bally Moor Drive, Downingtown  (484) 784-5159 Please contact [...]

The Kennedy Krieger Institute is sponsoring a research study on boys with Down syndrome. Study details: Who: Boys, ages 3-12, with Down syndrome to participate in a behavioral and genetic research study. What: We will be testing learning skills, behavior, and measuring physical and motor development. We will also obtain a small blood sample for [...]

The T21 Club of the Delaware Valley, in affiliation with the National Down Syndrome Society, is sponsoring  Down Syndrome Awareness Day at The Philadelphia Zoo. $14 per person includes: Family fun and face painting! A free t-shirt! Games and activities at the Zoo Pavilion from 12PM-3PM! For more information, please contact Jennifer Bonawitz, Director, at 215-990-8730 or T21club@comcast.net. or visit http://www.t21clubofthedelawarevalley.org. [...]

July 2010

Click here to view the NDSS August 2020 e-newsletter: http://ndss.org/images/stories/NDSSresources/pdfs/august_e-news.pdf Share on Facebook

Dennis McGuire, PhD Adult Down Syndrome Center of Lutheran General Hospital Park Ridge, Illinois This paper was originally delivered as a plenary address at the conference in Chicago in July of 2005, co-sponsored by the National Down Syndrome Society and the National Association for Down Syndrome. It was well received by the audience, and we [...]

And for dancers with Down syndrome, it stands for dreams come true By Karen White At first glance, there’s no mystery to the “d” in “Company d.” It stands for dance, or maybe for Darlene Winters, the speech therapist and lifelong dancer who founded the group nine years ago. Learn a bit more, and you [...]

June 2010

Special thanks to Wendy Badman and photo by Wendy, LLC. Photo by Wendy is featured on facebook, please tell you friends, family and students to “like” us!! Thanks!! Here is the direct link : http://companies.to/photobywendy/ Share on Facebook

Come Celebrate our 10th Annual Budy Walk! Be sure to register at Active.com Come join the fun!! Take some time to visit our display and demonstration tables. Enjoy our Display of Abilities, featuring the talents of many of our own young adults and children with Down syndrome. Visit with magicians and clowns, have your face [...]

May 2010

Click here to view the NDSS May e-newsletter http://ndss.org/images/stories/NDSSresources/may%20enews%20word97-%20final.pdf Share on Facebook

On Friday, June 11th, the 2nd annual Dub C 4 miler run will take place through the beautiful streets of downtown West Chester.   The greatest part of the race this year — proceeds benefit the Chester County Down Syndrome Interest Group.  If you are a runner or know a runner check out www.DubC4Miler.com for more information!! Share on Facebook

The 2010 Valor Bowl will be held Wednesday, June 2, 2010 at Conestoga High School. The Valor Bowl is an all-star game showcasing the best senior football players from area schools & proceeds benefit the Chester County Special Olympics. Learn more at www.ValorBowl.org Share on Facebook

April 2010

Camphill Special School in Glenmoore, PA is hosting an open house for interested families beginning at 10:30am on Saturday, May 15th. Camphill Special School is an Approved Private School and also a Waldorf School. For more information about Camphill Special School and directions, please go to:http://www.camphillspecialschool.org/ Share on Facebook

Please join the CCDSIG for a presentation on sibling issues, led by: Dale Fisher, Amman Mellon, PhD, and Gail Post (others may be added.) Event time: 8:30am coffee and light breakfast, 9:00am – 12:00pm program. Please R.S.V.P. to the CCDSIG Hotline at 610-889-0291 or email board@ccdsig.org. For directions to St. Paul’s Lutheran Church, please go to: [...]

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants [...]

Please join the T21 Club of the Delaware Valley, in association with the NDSS, for Down Syndrome Awareness Night at Citizens Bank Park! The Philadelphia Phillies are hosting the St. Louis Cardinals, and it will also be Hatfield Phillies Franks Dollar Dog Night, so don’t forget to bring your appetite! Seating with supporters will be [...]

February 2010

INCLUSION TODAY – HOW TO MAKE IT WORK FOR YOUR CHILD?   with CCIU INCLUSION SPECIALISTS: PATTY GIESCHEN AND CHARLIE ROBEY February 11, 2010   10:00am – 12:00pm INCLUSION TODAY – How to make it work for your child!  A brief snapshot of how special education has arrived at the inclusive practices of today, followed by a discussion of [...]

January 2010

CCDSIG_Micah

by Joseph Shapiro December 29, 2009   Micah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Courtesy Micah Fialka-FeldmanMicah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Here’s one reason [...]

November 2009

Please call us at (610)889-0291.  We’d love to hear from you and tell you more about the group. Share on Facebook

October 2009

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we [...]

232323232fp537;;_nu=3388_288_846_WSNRCG=3289576;94343nu0mrj

What a great day!  The 2009 Buddy Walk was a resounding success with over $30,000 raised.  Thanks to everyone who participated as well as the overwhelming support for friends, family, and local businesses that support our Buddies. Please visit the Photo Gallery page to see just a few of the day’s highlights. Share on Facebook

August 2009

eks2

  As founder and honorary chairperson of Special Olympics and executive vice president of the Joseph P. Kennedy, Jr. Foundation, Eunice Kennedy Shriver has been a leader in the worldwide struggle to improve and enhance the lives of individuals with intellectual disabilities for more than three decades. Please visit her website to learn more about [...]

We are please to announce that the following members have been elected to the Chester County Down Syndrome Interest  Group, Inc., Board of Directors for a two year term starting July 1, 2009. Please Congratulate: Elaine Scott – President Heidi Slater – VP of Education and Planning Colleen Brennan – Treasurer Chris Hyson – Membership [...]

more alike

We’re More Alike Than Different. It’s the theme of the new NDSC Down syndrome awareness campaign. As resources mount we will bring that message to doctors, teachers, employers and your neighbors. It’s a simple, compelling and, ultimately, essential message delivered by self advocates – their stories told in their voices. Each time our message appears [...]

ndsc

The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome. The purpose of the NDSC is to promote the interests [...]

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued [...]

July 2009

Buddy Walk Logo

What is the Buddy Walk? The Buddy Walk was developed by the National Down Syndrome Society in 1995 to promote awareness and inclusion of people with Down syndrome. The Buddy Walk has grown from 17 walks in 1995 to more than 260 walks were held in 2005. The goal of the Buddy Walk is to [...]

By Category:

Archives

Buddy Walk Logo

What is the Buddy Walk? The Buddy Walk was developed by the National Down Syndrome Society in 1995 to promote awareness and inclusion of people with Down syndrome. The Buddy Walk has grown from 17 walks in 1995 to more than 260 walks were held in 2005. The goal of the Buddy Walk is to [...]

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued [...]

ndsc

The National Down Syndrome Congress (NDSC) is a not-for-profit organization founded in 1973. The NDSC is governed by a twenty-two member Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome. The purpose of the NDSC is to promote the interests [...]

more alike

We’re More Alike Than Different. It’s the theme of the new NDSC Down syndrome awareness campaign. As resources mount we will bring that message to doctors, teachers, employers and your neighbors. It’s a simple, compelling and, ultimately, essential message delivered by self advocates – their stories told in their voices. Each time our message appears [...]

We are please to announce that the following members have been elected to the Chester County Down Syndrome Interest  Group, Inc., Board of Directors for a two year term starting July 1, 2009. Please Congratulate: Elaine Scott – President Heidi Slater – VP of Education and Planning Colleen Brennan – Treasurer Chris Hyson – Membership [...]

eks2

  As founder and honorary chairperson of Special Olympics and executive vice president of the Joseph P. Kennedy, Jr. Foundation, Eunice Kennedy Shriver has been a leader in the worldwide struggle to improve and enhance the lives of individuals with intellectual disabilities for more than three decades. Please visit her website to learn more about [...]

232323232fp537;;_nu=3388_288_846_WSNRCG=3289576;94343nu0mrj

What a great day!  The 2009 Buddy Walk was a resounding success with over $30,000 raised.  Thanks to everyone who participated as well as the overwhelming support for friends, family, and local businesses that support our Buddies. Please visit the Photo Gallery page to see just a few of the day’s highlights. Share on Facebook

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we [...]

Please call us at (610)889-0291.  We’d love to hear from you and tell you more about the group. Share on Facebook

CCDSIG_Micah

by Joseph Shapiro December 29, 2009   Micah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Courtesy Micah Fialka-FeldmanMicah Fialka-Feldman attends Oakland University, one of many schools and community colleges that are setting up programs for students with Down syndrome. Here’s one reason [...]

INCLUSION TODAY – HOW TO MAKE IT WORK FOR YOUR CHILD?   with CCIU INCLUSION SPECIALISTS: PATTY GIESCHEN AND CHARLIE ROBEY February 11, 2010   10:00am – 12:00pm INCLUSION TODAY – How to make it work for your child!  A brief snapshot of how special education has arrived at the inclusive practices of today, followed by a discussion of [...]

Share on Facebook

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants [...]

The 2010 Valor Bowl will be held Wednesday, June 2, 2010 at Conestoga High School. The Valor Bowl is an all-star game showcasing the best senior football players from area schools & proceeds benefit the Chester County Special Olympics. Learn more at www.ValorBowl.org Share on Facebook

On Friday, June 11th, the 2nd annual Dub C 4 miler run will take place through the beautiful streets of downtown West Chester.   The greatest part of the race this year — proceeds benefit the Chester County Down Syndrome Interest Group.  If you are a runner or know a runner check out www.DubC4Miler.com for more information!! Share on Facebook

Click here to view the NDSS May e-newsletter http://ndss.org/images/stories/NDSSresources/may%20enews%20word97-%20final.pdf Share on Facebook

Special thanks to Wendy Badman and photo by Wendy, LLC. Photo by Wendy is featured on facebook, please tell you friends, family and students to “like” us!! Thanks!! Here is the direct link : http://companies.to/photobywendy/ Share on Facebook

Click here to view the NDSS August 2020 e-newsletter: http://ndss.org/images/stories/NDSSresources/pdfs/august_e-news.pdf Share on Facebook

The Kennedy Krieger Institute is sponsoring a research study on boys with Down syndrome. Study details: Who: Boys, ages 3-12, with Down syndrome to participate in a behavioral and genetic research study. What: We will be testing learning skills, behavior, and measuring physical and motor development. We will also obtain a small blood sample for [...]

The National Down Syndrome Society (NDSS) is pleased to announce that registration is now open for the 2010 National State of the Art Conference on Postsecondary Education and Individuals with Intellectual Disabilities sponsored by NDSS and the George Mason University . The conference will be held on October 28 and 29 at George Mason University [...]

Wednesday, November 3 / 9:30am-11:30am /Jeanie Mudgett-McGeoch’s home / 23 Dutton Farms Road / West Grove, PA  19390  Join families from the CCDSIG for a relaxing gathering over coffee, snacks, and lively conversation! Share on Facebook

GUEST SPEAKER:   Pat Bergmaier, Special Needs Planner, MetLife Center for Special Needs Planning Thursday, November 4 / 7:30pm – 9:00pm/ The ARC of Chester County / 900 Lawrence Drive, West Chester PA Share on Facebook

Pathways to Potential! Saturday February 26, 2011 7:30AM Registration (pre registration required, see below) 8:30AM – 5:30 PM Conference Citizens Bank Park Philadelphia, Pennsylvania WHAT’S IT ALL ABOUT? This dynamic team of Self Advocates are nationally recognized Motivational Speakers who have navigated through early intervention, classroom inclusion, transitions from high school to higher education and [...]

Registration is now open for the 2010 Down Syndrome Conference, sponsored by Princeton Disability Awareness.  The conference will be held on Sunday, November 14th at Princeton University.  Register now at:  http://www.princeton.edu/~pda/register.shtml We invite your family to join us on Princeton’s campus for a day of fun activities and important information.  Parents attend informative workshops featuring speakers [...]

Special Olympics, Chester County, Fall Dance!  Friday October 15th 2010, 7:00 pm to 10:00 pm Thorndale Fire Hall, Business Route 30, Thorndale PA, 19372 (Behind Caln Elementary School) There is a $5 Cover Charge  and ALL Participants must sign in with Adult and Contact info. For more info contact Joan Grimley at 610-286-6363. Share on Facebook

The PA Microboard Association invites you to join us Saturday, October 30 to hear……… David Gates, Esq. of the PA Health Law Project talk about the legal aspects of forming a Microboard. David is the foremost authority on the legal and operational aspects of forming a Microboard in PA.  He has guided and counseled many families in the process. [...]

Share on Facebook

Join us for this festive event ideal for kids 12 and under. All are welcome! Featuring picture taking with Santa (bring your own camera), delicious food, arts & crafts, music free Arc Art holiday cards for each family, and more! Please RSVP by November 29th. Sign-up online at www.arcofchestercounty.org, call us at 610-696-8090, or mail [...]

Join the CCDSIG for a Wine and Cheese on December 2nd beginning at 8:00pm at the home of Heidi Slater! Please RSVP to Heidi at heidi_huseby_slater@yahoo.com or call the CCDSIG hotline at (610) 889-3151. We hope to see you there! Share on Facebook

Due to family illness, the CCDSIG Holiday Coffee scheduled for Friday, December 10th at the home of Amanda Young has been cancelled. Stay tuned for information on rescheduling the coffee. Share on Facebook

Don’t miss the SANTA EXPRESS on Sunday, December 5th, with the train departing at 3:00pm! Please see blurb below (from West Chester Railroad’s website) describing the event, which is open to the public.  We are suggesting this festive public event as a chance to group up and get together with CCDSIG friends and ride the train together. There is [...]

Don’t miss the CCDSIG’s Mom’s Night Out on Thursday, January 6, 2011, meeting at 7:30pm at McKenzie’s Brew Pub! If you plan to attend, please RSVP to  Heidi Slater at heidi_huseby_slater@yahoo.com or CCDSIG hotline at (610) 889-3151. Share on Facebook

Come bounce, slide, and celebrate CCDSIG’s birthday with your CCDSIG friends on January 23rd from 12:30 – 2:30pm! Pizza, cake, and drinks will be provided. Please RSVP to www.ccdsig.org or CCDSIG hotline at (610) 889-3151 or heidi_huseby_slater@yahoo.com.  Phone number for BounceU is (610) 363-6610. Share on Facebook

Please join the CCDSIG for a very important topic about keeping people safe. This presentation is geared for kids with a puppet show format and corrects outdated “stranger danger” information by empowering children with safety skills that last a lifetime! Participants will learn: * How to use their eyes, feet, heart, and voice to be safe. * How to YELL [...]

Please join us on March 13th, from 3:00pm – 6:00pm, for the 13th Annual CCDSIG Teen Dance held at Mitch’s Market Street Gym!  The location for this event is 322 W. Market Street, West Chester, PA. Join Matt Reilly, Disco Star DJ, for this FREE event, with dancing, snacks, and pizza! Hosted by The Chester County Down Syndrome Interest Group, [...]

Please join the CCDSIG on March 19th, from 9-10:30 am, for an interactive workshop, “Similarities and Differences.”  We will be hosting this at the ARC of Chester County, 900 Lawrence Drive, West Chester, PA. This presentation will teach YOU how to teach others about a variety of disabilities and to appreciate and respect the similarities and differences in [...]

Please join the CCDSIG on March 3rd, from 7:30pm – 9:00 pm, for an interactive discussion, “Understanding The ARC and Their Valuable Offerings.”  We will be hosting this program at the ARC of Chester County, 900 Lawrence Drive, West Chester, PA. Do you find yourself asking the following questions: “Who is the ARC of Chester County?”, “How can the [...]

Click here to view the NDSS February 2011 e-newsletter:  http://campaign.r20.constantcontact.com/render?llr=chgzaleab&v=001vd12ggE3Xa5MGnbwPunA2gPf5kiMa-h9D-1Ej5Q5zLZWgrfjphiEtz4UjPICKVtFmr2dA7nrXgzN1gpy3Ik0f1mX1pSwPndpalYAhTYj560%3D Share on Facebook

Lose The Training Wheels is pleased to announce confirmation of the first camp in the Philadelphia area for 2011.  Camp will be available at Harriton High School in Rosemont, PA the week of June 20-24, 2011. We also anticipate a camp in Bucks/Eastern Montgomery County the week of June 13-17.  Details are still in progress and [...]

World Down Syndrome Day is fast approaching! The twenty-first day of the third month, in honor of the third copy of the twenty-first chromosome, is the perfect time to raise awareness for people with Down syndrome and to celebrate their abilities and accomplishments. Join NDSS in celebrating World Down Syndrome Day in a meaningful way. [...]

Read an inspiring article from the Philadelphia Inquirer about two Chester County young men, Nicky DiOrio and Jordan Van Sciver, from Great Valley High School. To read the full article, please visit: http://www.philly.com/philly/sports/high_school/20110221_Great_Valley_girls__basketball_coach_Alex_Venarchik_NO_HEAD_SPECIFIED.html Share on Facebook

Please join us for a coffee social on Friday, April 8th, from 9:30 – 11:30am at Elaine Scott’s house. Kids are welcome!  This is always a nice way to catch up with old friends, meet new ones, and share experiences! Elaine Scott’s house is located at: 837 Cottonwood Drive (the intersection of Rt 352 and [...]

Please join us on Tuesday, May 17th from 7:30pm – 9:00pm to hear a presentation / discussion regarding education advocacy. This is the program that was originally scheduled for May 5th. Connie Mohn, from the ARC of Chester County, will speak to our group regarding this topic.   Location:  ARC of Chester County / 900 Lawrence [...]

The Learning Experience is holding a special fundraiser for Ally Stahelek. Ally was born on August 13, 2009 with Down syndrome and an AV Canal Heart defect.  Ally has overcome many hurdles in her short life and she continues to make progress! Our goal is to raise money so her family can buy her some [...]

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now [...]

My name is Lynn Carahaly, M.A., CCC-SLP and I am an SLP that specializes in Childhood Apraxia of Speech. I grew up in Exton, PA  I hope to be a valuable resource for you and your families of children with Down syndrome and apraxia. The Down syndrome population is one of the most under diagnosed [...]

The CCDSIG has been informed that there are a few openings remaining for this year’s Camp PALS experience. Camp PALS is a week-long camp for children with Down syndrome ages 14 – 21 held at Cabrini College, located in Radnor, PA. The mission of Camp PALS is to offer young adults with Down syndrome the best [...]

Special Education Advocacy Training is available at the ARC of Chester County. Attend just one session or all 12. Register now because space is limited for this National Board Certification Program. This training is ideal for parents, educators, lawyers, occupational therapists, psychologists, social workers, special education advocates, and speech/language pathologists. Session 1 – April 9, 2011: [...]

Please join the T21 Club of the Delaware Valley for our annual Beef and Beer on April 16, 2011 from 7P.M to 11P.M.. This fundraiser is being held at St. Katherine of Siena Parrish Hall, 9738 Frankford Avenue, Philadelphia, PA 19114, to support the T21 Club of the Delaware Valley. We are a regional advocacy group for individuals [...]

Join the Down syndrome community on Monday, May 23, 2011 for the Phillies game against the Cincinnati Reds at 7:05 p.m., Citizens Bank Park in Philadelphia, PA! Per the T21 Club of the Delaware Valley, there are over 800 people attending Down Syndrome Awareness Night! Tickets are subject to availability, there were only 84 tickets left, as [...]

We hope you can join us for a spring Coffee Social at Amanda Young’s house on May 6th. Kids are welcome!!   Location: Amanda Young’s house / 604 Brookhill Road / West Chester  Time: 9:30am – 11:30am Please R.S.V.P. to Amanda at ajyoung99@gmail.com or 610-344-7113 (Young Residence) Share on Facebook

CCDSIG Friends: The Upper Main Line YMCA is excited to share with us various opportunities available through the All Abilities Program. Upper Main Line YMCA Event, May 15th, 3:00pm – 5:00pm: Location: Upper Main Line YMCA / 1416 Berwyn-Paoli Road / Berwyn / 610 647 9622 Do you ever feel like your family is running [...]

The governor has proposed cutting more than $1 billion from education in order to help balance next year’s state budget. While many districts had already planned for spending reductions in anticipation of budget cuts, the scope and severity of the funding cuts caught most districts by surprise. Your state senators and representatives are in the [...]

Don’t miss the UP Festival, Saturday, May 14th, starting at 12pm! The UP Festival is the first of many of ROCK FOR CHOP’s events where guests will experience first hand the power that individuals with Down syndrome have to lift you UP. It is going to be a family friendly event featuring local bands, a [...]

CAMPHILL SOLTANE EXPOSITION: Discover who we are and what we are doing! Date: Friday, May 13, 2011 Time: 2:00 pm – 6:00 pm Place: Whitsun Hall at Camphill Soltane, 224 Nantmeal Road, Glenmoore, PA 19343 Admission free Camphill Soltane is an intentional community, a non-profit organization that provides continuing education and vocational pathways for adults [...]

Monday, May 9th – Friday, May 13th Campus locations: Monday – Thursday in the Rose Room, Friday in Whitsun Hall   Monday May 9, 7:30 PM: Advocacy Movie Night Tuesday May 10, 7:30 PM: Music and song by Tamara and BJ Wednesday May 11, 7:30 PM: Open Mic Night – $3 donation to benefit Susan [...]

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these [...]

Date: Tuesday, May 17th, 7:00pm – 8:00pm Location: Chester County Library, Struble Room Come to this FREE session for information about the financial and legal aspects of planning for someone with special needs. Learn about: Developing a personal care plan Protecting government benefit eligibility Understanding estate planning options and selecting a trustee Providing financial options [...]

Click here to view the NDSS E-Newsletter for May 2011. Share on Facebook

From http://westchester.patch.com For 32 years the people of Media have hosted a five-mile race to raise money for charity.  And for several years, this bothered West Chester’s John Manion. “I thought, ‘Why don’t we have a race?’” Manion said.  “I was asking everyone, and they all said, ‘I don’t know.  Do it.’” And hence, the [...]

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive [...]

Project SEARCH and Bryn Mawr Rehab Hospital Invite you to attend an Open House Saturday, September 17, 10:30 a.m. This is a great opportunity to lean about Project SEARCH, our program designed to teach employable skills to individuals with disabilities. Project SEARCH provides adults with disabilities the opportunity to explore job development and job placement skills. Please [...]

Project SEARCH and Bryn Mawr Rehab Hospital Invites you to attend an Open House Wednesday, September 14, 4:30 p.m. The Laurels Conference Room This is a great opportunity to lean about Project SEARCH, our program designed to teach employable skills to individuals with disabilities. Project SEARCH provides adults with disabilities the opportunity to explore job development [...]

CCDSIG families have been invited to join in on a fun family event on Saturday, September 10 and a portion of the proceeds are being donated to CCDSIG! We hope that you and your family can join the fun! The CCDSIG is very appreciative of Smaltz’s Harley Davidson’s generosity for hosting such an event. Details are below…. Smaltz’s [...]

Please note the location change for our Back-to-School Coffee scheduled for this Friday, September 23rd from 9:30-11:30am. Come see old friends, meet new friends, have some coffee and munchies, and enjoy some chit chat! Of course, all children – any ages – are welcome, too! NEW Location: Dana Wainstein’s house, 133 Candlewick Drive, Avondale PA 19311, [...]

REGISTRATION HAS BEEN EXTENDED UNTIL OCTOBER 31st! The Pennsylvania Education for All Coalition (PEAC) is hosting a conference on November 6 – 8, 2011 in Philadelphia. The conference will provide information on Inclusive Practices and will offer great speakers, sessions, a silent auction, and raffles. Participants can register for the entire 3-day conference or by the [...]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: [...]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the [...]

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with [...]

Princeton Disability Awareness (PDA) is gearing up for the 5th Annual Down Syndrome Conference coming up on Sunday, November 20th at Princeton University. As in the past, we are inviting your family to Princeton’s campus for a day of fun activities and important information.  While parents are attending the conference sequence featuring speakers and exhibitors who [...]

Please join the CCDSIG for a coffee social on November 4th from 9:30-11:30am at Elaine Scott’s house in Malvern. Connect with old friends, meet new friends, and welcome all of our new families! We look forward to seeing you there and know that all kids are always welcome! Location: Elaine Scott’s house 837 Cottonwood Drive (at the intersection [...]

The CCDSIG is pleased to offer a presentation regarding special needs trusts, estate planning, and preparing for the financial futures of our loved ones with Down Syndrome.  This is a critical topic for all families to fully understand and to begin discussing early and often.  Date:  Thursday, November 10th @ 7:30pm (lasting until approximately 9pm) Location:  East Goshen Township Building – [...]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and [...]

The CCDSIG is delighted to share that we will be hosting another presentation regarding special needs trusts and estate planning on January 19th. Again, this is a very important topic for all of our families and one that can never be stressed enough or discussed too early. It is critical to understand this topic as we plan for [...]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on [...]

Please join us for our annual CCDSIG birthday celebration on Sunday, February 12th from 3:45pm – 5:45pm taking place at Bounce U in Exton.  This is a family event for kids of all ages to celebrate our loved ones with Down syndrome and to enjoy time together!  Free pizza, cake, and “bouncing” for everyone, so we do ask families [...]

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals [...]

The T21 Club of the Delaware Valley, in association with the National Down Syndrome Society, is proud to sponsor the Down Syndrome Awareness Night at Citizens Bank Park on Monday, April 30th, when the Philadelphia Phillies host the Chicago Cubs at 7:05pm! Seating will be located in the following  areas: Pavilion Deck (sections 308-309) at $28 per ticket [...]

The T21 Club invites you to attend their annual Beef and Beer on March 24th, 2012 from 7:00pm - 11:00pm. This fundraiser is being held at St. Katherine of Siena Parrish Hall, 9738 Frankford Avenue, Philadelphia, PA 19114, to support the T21 Club of the Delaware Valley. We will have great food, music, wonderful raffle prizes, and fun for [...]

Catherine Lasak

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of [...]

Events

The T21 Club invites you to attend their annual Beef and Beer on March 24th, 2012 from 7:00pm - 11:00pm. This fundraiser is being held at St. Katherine of Siena Parrish Hall, 9738 Frankford Avenue, Philadelphia, PA 19114, to support the T21 Club of the Delaware Valley. We will have great food, music, wonderful raffle prizes, and fun for [...]

The T21 Club of the Delaware Valley, in association with the National Down Syndrome Society, is proud to sponsor the Down Syndrome Awareness Night at Citizens Bank Park on Monday, April 30th, when the Philadelphia Phillies host the Chicago Cubs at 7:05pm! Seating will be located in the following  areas: Pavilion Deck (sections 308-309) at $28 per ticket [...]

Featured

ndss_logo

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued [...]

r-word.org

Pledge Your Support ACT NOW–pledge your support to eliminate the demeaning use of the r-word. Tell us what you think. Make a Difference Create new opportunities by helping Special Olympics bring the gift of sport to one more person. Even the smallest donation can make a huge difference. Donate Now. Words Matter The language we [...]

Children with Down syndrome ages birth to 20 years are invited to participate in a research study at CHOP to develop new growth charts for children and young adults with Down syndrome. The current Down syndrome growth charts are outdated and may not reflect current patterns of growth in children and young adults with Down syndrome. CHOP wants [...]

And for dancers with Down syndrome, it stands for dreams come true By Karen White At first glance, there’s no mystery to the “d” in “Company d.” It stands for dance, or maybe for Darlene Winters, the speech therapist and lifelong dancer who founded the group nine years ago. Learn a bit more, and you [...]

Dennis McGuire, PhD Adult Down Syndrome Center of Lutheran General Hospital Park Ridge, Illinois This paper was originally delivered as a plenary address at the conference in Chicago in July of 2005, co-sponsored by the National Down Syndrome Society and the National Association for Down Syndrome. It was well received by the audience, and we [...]

On Saturday, March 19th, the Chester County Down Syndrome Interest Group, Inc. hosted a conference on “Respecting Differences”.  Our speaker was our very own, Kathy Bucher, who is a certified teacher with many applicable degrees, including the experience of being the mother to Samantha, 21, who has successfully navigated the school system and is now [...]

My name is Lynn Carahaly, M.A., CCC-SLP and I am an SLP that specializes in Childhood Apraxia of Speech. I grew up in Exton, PA  I hope to be a valuable resource for you and your families of children with Down syndrome and apraxia. The Down syndrome population is one of the most under diagnosed [...]

Kennedy Krieger Institute is looking for potential volunteers for one of their important research studies: The Down Syndrome Heart Project.  The Heart Project is one part of a larger study, entitled The Down Syndrome Phenotype Project, which is also enrolling families for cognition and facial studies.  However, families would not need to participate in all of these [...]

A Drug for Down Syndrome By DAN HURLEY Published: July 29, 2011 Early in the evening of June 25, 1995, hours after the birth of his first and only child, the course of Dr. Alberto Costa’s life and work took an abrupt turn…read more about this doctor and his quest to find medication to improve cognitive [...]

For our Facebook users, please take a moment to “LIKE” our CCDSIG Facebook page. Keep current with CCDSIG announcements, event promotion, and important information for the Down syndrome community, especially regarding the upcoming Buddy Walk October 9, 2011. As an added bonus, you can also add photos of your little superstar! To sign up, please visit: [...]

As a reminder to all CCDSIG families, there are ongoing sibling groups available in our area, offered by Dale Fisher, LCSW. The groups have been running for 8 years and have been a wonderful opportunity for all the children who have participated. New group members will be accepted for the fall. Following are details on the [...]

Image: David and Annelies Reilly, and their daughter Melissa

Melissa Reilly, 25, seen with her parents, David and Annelies, has Down syndrome. She’s also a Special Olympian and a college student. Article by Kimbery Hayes Taylor, msnbc.com contributor updated 9/29/2011 8:17:09 AM ET 2011-09-29T12:17:09 David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with [...]

The CCDSIG received the following email from One Voice Coalition and is posting their recommended Call to Action for CCDSIG families. The political climate for people with disabilities is getting worse in Pennsylvania.   This administration has stepped away from working with self advocates and family advocates.  The cuts to the budget have been drastic and [...]

In an effort to celebrate the UPSIDE of Down syndrome, the Chester County Down Syndrome Interest Group is creating a 2013 desk calendar, including pictures of our very own members! The calendar will be made available for sale at the October 14, 2012 Buddy Walk.  Order one today at board@ccdsig.org or by calling 610-889-0291. Share on [...]

The Institute on Disabilities, Pennsylvania’s University Center for Excellence in Developmental Disabilities at Temple University, is seeking participants to attend an exciting new program, Competence and Confidence: Partners in Policymaking/Emerging and Established Leaders (C2P2/EEL).  The program is designed for both Emerging Leaders: young adults with disabilities 18-30, who are beginning their careers; Established Leaders: individuals [...]

Catherine Lasak

January 30, 2012 · 8:55 AM Story and Photos by Kris Lawrence OHS Cheerleading Coach Michelle King invited Octorara High School Senior Catherine Lasak to be a part of the cheerleading squad at the boys basketball game against Radnor. Catherine showed her support for the team by cheering and encouraging the team, performing some of [...]

New Parents

Please call 610-889-0291 to speak with our new membership parent. We would love to hear about your new arrival!

Weight and length growth charts for boys with Down Syndrome for ages 0-3 and 2-18.

Weight and length growth charts for girls with Down Syndrome for ages 0-3 and 2-18.

Early Intervention services and supports can help a child’s development by answering questions about child development and more.

Questions for Healthcare Professionals: NOTE: Because we are parents, and not professionals, we do not claim that this is a complete list of the questions you should ask. Armed with knowledge, you will be able to supplement this list with questions that are specific to your child’s needs.

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

What is Down Syndrome

We’ve compiled a list of links beneficial to parents of Down Syndrome children.

Myth: Down syndrome is a rare genetic disorder. Truth: Down syndrome is the most commonly occurring genetic condition. One in every 733 live births is a child with Down syndrome, representing approximately 5,000 births per year in the United States alone. Today, more than 400,000 people in the United States have Down syndrome. Myth: People [...]

Below are tips for the proper use of language for ‘Down syndrome’. The National Down Syndrome Society and the National Down Syndrome Congress encourages all media to use the below language: Down vs. Down’s. NDSS and NDSC use the preferred spelling, Down syndrome, rather than Down’s syndrome. While Down syndrome is listed in many dictionaries [...]

Who We Are

The Chester County Down syndrome Interest Group Inc.’s mission, the UPSIDE of Down syndrome.

The following members have been elected to the Chester County Down Syndrome Interest Group, Inc., Board of Directors for a two year term starting July 1, 2009.

The Chester County Down Syndrome Interest Group, Inc. is eligible to receive contributions through the United Way Donor Choice Program of Southeastern PA and of Lancaster County.

The Chester County Down syndrome Interest Group (CCDSIG) is a nonprofit organization that began in 1998 with a group of parents who wanted to meet for social contact and support.